I was diagnosed with ulcerative colitis in September 2012, I was 20 years old and just about to start university.
I had been battling with colitis for a very long time before, but as a typical embarrassed young girl I carried on unaware of the seriousness of my symptoms until it become to a point where I couldn’t shy away from It anymore.
I mean, there is only so many times you can go to the toilet a day….. I was losing blood like it was going out of fashion.
That was when my doctor told me I needed a colonoscopy, now at 20 years old and to be told you need a camera shoved up your backside I was pretty damn scared! This was possibly the most painfullest experience in my life, but it gave me an answer to my problems. I was sent away with some medication, and was over the moon that finally
I could be ‘normal’ again. I couldn’t of been anymore wrong.
What they didn’t tell me was that ulcerative colitis was a chronic illness ‘life long‘ with no cure. I only found this out when it was almost too late. In November 2012 only 2 months after being diagnosed my health deteriorated to the point where I was admitted into hospital this was where the my battle began. That month I spent in hospital was possibly the darkest time I’ve had to face in life so far, being told that my condition could become fatal whilst my mum sat next to be holding it together, and I couldn’t even think straight. Everything felt like a bad dream, I kept trying to pinch myself to wake up.
I’ve been lucky to escape the surgery twice now by the use of very strong immunosuppresseurs, something I’m mentally not ready for. From the scare I had in 2012, when I wasn’t prepared to be faced with it, as I never know it could result in living with a colostomy bag I’ve had that fear ever since. Something I’m very honest about, I really admire people that do live with colostomy bags, I know in the near future I’ll need the surgery due to my colitis being very active and severe. But right now I want to focus on battling It until I know I can give no more, and when I’ve tried every medication possible!
It was only on my recent scare I felt the need to create this blog to make some more awareness and maybe help newly diagnosed IBDers not feel so alone.
To this date ( feb 2014) I have had 2 major hospital admissions, 5 scopes, infusions, transfusions and many different treatments.
But despite all this I’m now on my 2nd year of university, and hitting the gym as hard as possible not letting my colitis get in the way! One day we will find a cure of IBD and I want to be here to see it! SO lets do it!
October 14′ updated ‘about me’
WOW… Alot has happened since I wrote this ‘about me’ I mean…. A LOT! I was recently admitted In hospital (August 2014) due to another uncontrollable flare up, my body had created anti-bodies to Inflixmab a very strong immuesuppresser. After speaking to a number of specialists and assistants of a surgical team I have now decided to go for surgery…. (I KNOW… ME CHOOSING THIS… CRAZY) because only a couple paragraphs up I expressed to you all how I never wanted that surgery.
But Im ready, mentally & physically. After the pain and set backs I think my body deserves a break, a ‘break free’ from this crippling Illness that has ruined my life for over 2 years now.
More is to come of this…. so keep updated 🙂